[Corey Cohron RIP]

From Morgan's journal 7-22-11

Hello all,

Donna and I met with Dr. Murray, the oncologist, today. He said that the tumor markers match the previous tumor exactly, so this is a recurrent aggressive ependymoma.

He told us that he would like to do another series of radiation therapy. He also said that there really isn't any data to support it one way or the other, simply because the data doesn't exist. The type of tumor that Morgan has, makes up less than 8% of pediatric tumors world wide, so there just isn't any type of background for us to go on.

We are praying about whether or not to do the therapy, we don't want to hurt Morgan anymore than she already has been, especially if there isn't good data to support exposing her to even more dangerous radiation. It also doesn't look good for her to do radiation this close to her last radiation exposure. We did the maximum dosage in 2009.

We will meet with the radiation-oncologist sometime in the next couple of weeks and see what she has to say and recommend and what risks are involved.

Of course the overall prognosis isn't what we want to hear, and that is that her tumor will return again and again until it takes her life. Again, there isn't much data to provide us that is long term. Dr. Murray said that Dr. Donahue felt like he removed the tumor entirely, which is the best thing for an ependymoma. We are so thankful for all the doctors and staff at Cook's. They have done a wonderful job.

This all said, the final say is ALWAYS left to God. The best news is that we KNOW it says in Rom 8:28 that all things work together for good to them that love God, to them that are called according to his purpose.

We also know is Ps118:8 It is better to trust in the LORD that to put confidence in man. In John 14:1 Let not your heart be troubled; ye believe in God......

That is what we are going to try to do, BELIEVE in God and his promises and enjoy each day! Thank you again for your support and prayers of encouragement!

Tony & Donna